Kirsty's Story

Living with Neurofibromatosis and Scoliosis
  • Also available as: Perfect Bound Softcover
  • Published: February 2011
  • Format: Dust Jacket Hardcover(B/W)
  • Pages: 264
  • Size: 6x9
  • ISBN: 9781456770488
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In 1998 Kirsty was enjoying weekly swimming lessons; and she had also joined the same dance school as her brother (Christopher). Chris had been having dance lessons for a few years and Kirsty wanted to dance on a stage like her brother and was looking forward to her next stage show. Ten years on and Kirsty can no longer dance or swim as well as she could when she was eight years old. She had to give it all up due to being in so much pain. She depends on elbow crutches and use's a power scooter when out shopping and needs help with some of her everyday needs. Kirsty's story tells how and why her life changed due to the problems caused by Neurofibromatosis and Scoliosis. And how she's managed to overcome any obstacles put in her way.

When Kirsty was 11 weeks old she was diagnosed with Neurofibromatosis (NF1), which caused no problems until she was eight years old when she was also diagnosed with scoliosis. She now lives a very different, but full life, where she is surrounded by her family and a large group of friends, some of whom have made a contribution to this book with their own thoughts.

Kirsty's story is a remarkable one. Physically she remains weakened by her condition but her personality and character remains undamaged.

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